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Officials discuss impact of sickle cell disease and gene therapy advancements

Insurance Rate Reporter / 1 month ago

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Clark Groce CIO | Official Website

Insurance and Safety Fire Commissioner John F. King participated in a roundtable discussion in Charleston, South Carolina, with U.S. Department of Health and Human Services Secretary Robert F. Kennedy and Senator Tim Scott of South Carolina. The discussion focused on the effects of sickle cell disease.

The roundtable included input from lawmakers, regulators, patient advocates, and private sector representatives. Sickle cell disease is a genetic disorder affecting red blood cells, leading to symptoms such as extreme pain, infection, fatigue, and sensitivity to temperature changes.

Commissioner King expressed gratitude for the participation of Secretary Kennedy and Senator Scott, acknowledging the impact of sickle cell disease on families nationwide. King stated, "Hearing stories from patients who long suffered from this disease that are now on the road to recovery thanks to revolutionary cell-based gene therapy is truly inspiring and gives hope to all that are affected by sickle cell. I look forward to working with our public and private partners at every level to improve patient outcomes, decrease costs, and unburden our healthcare system."

Treatment options for rare blood diseases, such as sickle cell, are often limited, resulting in hospitalizations and costly emergency visits. The U.S. Food and Drug Administration has approved two cell-based gene therapies for treating sickle cell disease in individuals 12 years and older.

The Office of Commissioner of Insurance and Safety Fire aims to protect Georgia families by ensuring access to essential insurance products and safe buildings through fair regulation, fostering economic opportunities for citizens.

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Georgia Department of Insurance & Safety Fire